Hi girlies!

I'm back! And better than ever (almost).

So as many of you know I had my laparoscopy on Monday. I've need a little more time to recover than I initially thought as I didn't realise just how much was going to be done and how much rest I would need. I also didn't realise how well the bowel prep works. I am still having great ease going to the toilet. So I'll start with telling you what I was supposed to be having done.

I had spoken to Mr Chappate about excising the endo so there wouldn't be any pain after surgery and I would be endo free and so we agreed this would be the main procedure. I also wanted to check my fertility and he said that and easy way to check was to have a dye test which will be put through my fallopian tubes to check that my eggs can come through with ease. He also said he was going to check my diaphragm to see if the endo had spread there as I was having chest pain. When I arrived this was all clarified and I signed the consent form.

No before I tell you exactly what happened and what the results are, I just want to mention how absolutely faultless the whole process was. I walked in and was taken to my private room straight away and asked immediately what food I would like when I woke up. This has never been done before and usually I had to wait for the next mealtime and had whatever they had spare. This time I got a choice. I got myself changed and had around six nurses in the two days I was there all caring for me. It sounds like a alot but I all got to know them and become friendly with them. They even all came to see me when I was going home. I had amazing care. In my local hospital you wait around fifteen minutes for someone to respond to your buzzer, they were in my room within 15 seconds. I never felt like a burden on them as they always had a smile on their faces and were always happy to help. Even if some of it was gruesome. I cannot praise them enough for what they did and how good everyone was. The kitchen staff came to see me twice a day and always asked how I was. The on site medical officer was a great help and  was very sympathetic. Both the surgeon and anaesthetist came to see me within half an hour of admission. Just fantastic.

Anyway, I signed the consent form to say I'm happy to have a laparoscopy, dye test and to have a rummage around. Because I have adenomyosis as well, he wanted to put the coil in but I wasn't happy with that so I just asked for the other bits to be done. I asked if he could do something for the adeno but said that the one thing he can do would leave me unable to conceive so I left it. I also said that anything that needs taking out, just take it unless its my reproductive system. So on extras, he put laparotomy in case there was any extensive work to do.

I went down to surgery and was in the anaesthetic room by 10:30am. I didn't realise quite how long I had been and just remember waking up and 2pm. It took me ages to wake up and I felt quite sick but that soon went away. I don't remember going down to my room but my fiance told me afterwards that I looked like I was dead as I was really pale and because I'd been 3 1/2 hours, he thought something had happened to me. My parents told me later that he had to stay outside for a short while as he was quite upset at how ill I looked. Later that day, the surgeon came to see me and explained that he did the lap and the excision and dye but there was a little extra he had to do. I already knew that as I had 4 incisions unlike my previous one. He opened me up and had a look around and there was nothing on my diaphragm so that was ok. He did find that my appendix was covered and so had to remove it. I also had lots of endo all over my peritoneum and so had to have TPPE. That is where the whole of the peritoneum wall is removed and then burned to take the endo away and stop it from bleeding.

The area around the uterus, bladder and rectum is the peritoneum, all the way up to the stomach cavity. All of the lining was taken away from here as it was covered by endometriosis.

So, I had Total Pelvic Peritoneal Excision and an appendectomy which is quite extensive surgery but that's not all. So far its been good news that the endo has been taken away but, I still have adenomyosis and also the result of the dye test is that my right tube is completely blocked, although he feels like this is only temporary and that it shouldn't affect fertility.

I did ask about fertility and he said that he can't tell by looking at me and I will have to start trying before anyone can determine my chances but I'm not to leave it too late and that if I want good chances that it wouldn't be a bad idea to start trying now. I wouldn't mind that but if he isn't 100% certain then I'm not in such a rush and will probably leave it until I am settled in a job after uni. He did say that the ideal time to start would be around 20-25 and not much later. At the end of the day, the later I start trying, the later I found out whether there is a problem, the later I start treatment, the later I start IVF or whatever. If I started sooner rather than later, then I'm not going into my thirties or fourties thinking that things will be fine and it being too late to try and treatment.

In regards to my adeno, he said that until I want to sue the coil or have a hysterectomy, I will need to either keep having prostap or use the patches that I have used for a while that work very well or be pregnant. Although this seems drastic, it is the only thing I can do to help keep the endo at bay and keep the adeno from being too painful.

As for recovery, I am doing ok. I started walking the day after surgery although it was extremely painful. I did a little too much and so have been given orders to rest up and let people do things for me. The pain from my appendix being removed and the TPPE is controlled well with a concoction of painkillers, but not fully as there is still the odd twinge. My gas pains, on the other hand, are making it very difficult to recover. I can barely get two hours of sleep before I wake up hurting, if I move after sitting then I can barely breathe with the pain and when I sit or walk, my shoulders are extremely achy. If the gas pains went then I would be able to deal with the rest of it. I am drinking flat coke until it comes out of my ears, I am taking Wind-eze and peppermint capsules to help but so far, there has been no ease to the pain. If anyone has anymore ideas then please let me know.

For now, I think that is all I have to say. If there is anything else then I will post it and let you know. As usual, thank you for reading and I hope that you are all as pain free as possible.

Leya xoxo

So next week is my lap. I have it on Monday and although I am totally relaxed about it, there are still a few nerves there. I seem to want to call up my specialists secretary to ask her random questions that don't even need asking. I packed two weeks ago ready for Monday and I am totally over-prepared.

I had my bloods done today and for the first time it didn't hurt. I think its because I didn't dwell on it, I just went without thinking about it and then I had them done. That's how I've been throughout this whole process. I don't know whether it's all because I don't believe it's not real yet or whether I'm just chilled about it all but I don't feel stressed or nervous about anything as, like I say, I'm fully prepared yet I still feel like I'm nervous and for no reason at all.

I've not been thinking about the whole conceiving aspect of things for a while now. I've been side tracked I think with such a busy month and a lot of things happening. I feel like I need to prepare for my holiday next month, going to my friends birthday party, visiting a few universities, starting my next course, starting the gym, all whilst trying to recover from the surgery so I don't think I've really considered it. I have absolutely no idea what I would do if he said that it would be good to start trying now. I guess I feel like I need to be more prepared for it, like having a job, having my own place, having a constant income. It's just not top of my list yet.

I am thinking of asking for either uterine artery embolization or endometrial ablation as I've been having increased symptoms of the adenomyosis. I have been having so much pain during sex that it takes at least 15-20 minutes for me to stop hurting so I can enjoy it which is getting to me as we should be like every other young couple and be able to do it whenever and wherever we want! I've also been needing the toilet every 2-3 hours and am desperate when I wake up, which isn't normal for me as I usually only need a wee once or twice a day. I don't know whether this was because of the prostap or the adeno but I have also had migraines frequently which is causing problems as I can't concentrate properly. I've also noticed palpitations but never recognised that as a symptom because I though it was normal but apparently as the condition worsens and reaches the later more severe time, it can cause palpitations because of the change in hormones.

Now, I've used Evra contraceptive patches for a while as some of you might know, and it usually helps with my periods a lot. I usually only get a very light bleed for a few days, max of 4 days and I don't get any pain. This week, I have had pain, not as bad as it can be but enough for me to notice. I've also been on since Saturday which is 3 days and it shows no signs of slowing down yet, as I am quite heavy still. I don't know whether that is to do with the prostap messing my hormones up or whether it is the adeno making it harder for the patches to work against it.

I think that's enough rambling for one night and so I wish you all a happy summer and until next time, take care!! :) I will hopefully update you all after my lap but it may not be straight away.

Thanks for reading :)

Leya xoxo

Hey there everyone,

Since my last blog there's not really been much to talk about so haven't felt the need to post.

Last week I had a package that arrived when I wasn't home so I had to go to my local depot to collect it. When I got there I was passed a rectangular package that was very intriguing. I wondered what it could be and the guy who got it for me told me it was from Kent Spire Hospital. Then came the best part, for the last 24 hours I was thinking it was something amazing that I know I hadn't bought so someone else must have gotten me....no, it was my bowel prep. My fiance laughed when he found out what I'd been excited about was just bowel prep for surgery.

I'm starting to get more and more nervous as time goes on as its only two weeks and two days away now. (Yes, I'm that anally retentive about it that I'm even counting the days) I even rung the secretary and asked her a bunch of random questions. I asked whether my mum, dad and fiance can get food in the hospital, whether I'll be on a ward or in a private room and also if I can start using my contraceptive patches again. They're almost irrelevant to my surgery but I'm so nervous that I need to make sure everything is perfect.

My family can visit from 10am - 9pm which is unusual as my local hospital is 5pm - 6pm and 7pm - 8pm. I'm glad that they can be there all day for me though. There's a restaurant in the hospital and I get my own private room, they don't have any wards. I'll get en suite bathroom, a little dining set for me to eat at and apparently it's quite spacious. As for the patches, she said to start taking them again and she'll check whether its ok or not.

I have been almost pain free for a while now but today I woke up in extreme pain in my ribs again so maybe the pain will still be there, just not as often as usual.

I went to a taster day at my college 2 days ago and I have to say the new principal I've got is amazing. (Yes, principal for a college, I found it weird when I first went) She has changed everything around and has made learning easier. We used to work for the whole year and then two weeks before the end of our course we would have study sessions to improve our grades. She's changed it so that we work in blocks of six weeks which will be so much easier for me because if I have time off, I can catch up quicker than waiting a whole year. We work solid for 5 weeks then have a RAD week (Review and Development) where we improve our grades. Also, I am so excited to start this course now as it looks amazing, I want to hurry it up so I can get to uni and do midwifery. I found it hard walking around college all day though so I'm thinking I might have to start taking painkillers more often as time goes on.

I've also been offered to go to the local gym with a friend from college. I'm hoping that with walking around  a lot and going to the gym, I will get fit and not be in so much pain as they say that exercise helps....I'll be the judge of that. So far, every time I try to do some sort of activity it hurts.

So, at the moment, all is good. I'm getting stoked about this next course but just wondering if the pain will hold off so I can be a full time learner, my lap is coming up and hopefully that will help a lot and the place I'm staying seems amazing.

Good luck to anyone who's having a lap soon or has just had one, I wish you all a speedy recovery and a long time pain free.

Thanks for reading,

Leya xoxo

Hey everyone,

Again, I've left it a while so I'm sorry about that. The reason being that I've had a really bad few weeks since my second prostap. I thought that this one would end up working but obviously not. I've had pains in my chest/ribs for the last two weeks, not affecting my breathing but affecting my sleep immensely. I have gone the last two weeks with barely any sleep, going to sleep at 4am and waking up at 8am isn't the best thing to do when you're already so drained, but I just couldn't sleep with the pain. Over the last three days I've also had slight period cramps yet I've not come on....yet. I've got a definite time and date for my laparoscopy now which is 8am on 21st July. I'm staying over one night as I live over 200 miles from where I'm having surgery (about 4hours away)

I'm hoping that I can get some answers from surgery. There's definitely a lot of questions. I want to know exactly what position my womb is in and what shape and size as I've had a lot of different stories about my womb. If he can, I want some pictures so I have visual proof of everything. He's doing a dye test in my fallopian tubes which if any of you don't know, that's where they put a dye in your tubes to test fertility and see if they're blocked or not, if they are then they can flush them out.

I'm hoping that this will help my pain and that its good news that I can conceive naturally and that I don't need to rush into having babies. If I do then I do and I'll work around it. I wouldn't want to go against him saying there's little to no chance or that I can have them but not for long as it would be harder. If that was the case then I'd just try now so I can have them in a few years time (depending on the length of time it takes but its never an overnight thing).

I hope you're all well and as pain free as possible and I will keep you updated until my laparoscopy. I will post after my laparoscopy but not necessarily straight away. Thanks for reading.

Leya xxxxx

Hey everyone!

So sorry I've not posted in such a long time. Last time I posted I spoke about how my consultation went with Mr Chappatte. Since then I had my injection of what I though was zoladex but was in fact prostap. It may not seem like a big deal to anyone else but I had prepared myself for zoladex and when no one told me until I walked in for my injection it kind of annoyed me. I know they're pretty much the same but they're also very different and the nurse made me laugh by trying to convince me otherwise. Anyhow, I had it and everyone I spoke to was right in that it doesn't hurt as much as having blood done. I've had botox for hyperhydrosis and that was waaaayyyy more painful than the prostap. It stung with the initial injection and then it was fine until she injected it which stung again but nothing unbearable.

The symptoms I had instantly was dizziness, as if I'd had a bit too much to drink ;) Apart from that there was nothing apart from irritation, a rash, soreness and swelling around the area where I was injected, about the size of an egg. The following 2 days I was in pain all day non stop. If you don't want TMI then I suggest don't read the next part but this is an honest view of my experiences so I'm not leaving anything out. The following 4 days I had an excessive amount of discharge and I had a yucky mucus on the following Friday. I said not to read it if you don't want want TMI :)

Since then I've argued with my specialist about how exactly this is supposed to be helping me. I personally do not see any improvement. In fact last night I barely slept at all, waking up and being in pain then struggling to sleep again, over and over again. He seems to think that my side effects will get better over time but I feel like I've heard that story a million times. "The pill will stop your periods if you take it back to back" Did it? NO! "The implant will stop your periods after 3 months" Did it? NO! "The implant actually takes 6 months so come back then" Did it work then? NO! After 1 1//2 years "Oh, it didn't work as it was placed incorrectly" I'm sick of the same story over and over and me being right every time.

The patches I had to help with bleeding and painful periods worked perfectly. No, they didn't stop my periods but the pain and heaviness was almost halfed if not quartered. As many of you know on zoladex or prostap, you can't use hormonal contraception so even if I wanted to use the patches just to help my periods, they wouldn't work.

I finally have a date for my lap with Mr Chappatte. I will be going down on the 21st July for my lap. Depending on what time it will be booked for, I will travel down the day before if its early or the same day if its later. He said I'll stay in at least over night if not a few days to heal before I make the long trip back home. I'm almost looking forward to having some help but I'm nervous about what he might find and if he can even help me.

If I'm completely honest, that is all I've been doing since the prostap is being in pain and trying to arrange my lap date and time. I have been doing college still and did my Science exams the last two weeks and next week I have English, the following week is Maths. I know my English and Maths will be ok but my Science on the other hand has been terrible because I've had to miss so many lessons because of this stupid condition. I'm thinking of trying to get DLA or PIP, whatever it is now, but the process is so lengthy (I've done it twice now, I think, maybe three) I don't know if I can be bothered to do it. You can't do it online anymore, you have to call and ask for a form which is a million pages long. I might do it after my exams when I've got time to do it.

I hope you are all well and contact me or leave a comment if you'd like to share your story or if you'd like to tell me your experiences. Even if you just want to reassure me. Speak soon and I promise I'll try to keep up this time. Good luck to everyone out there dealing with this and going through a hard time.

Leya xoxo

Today I went to the specialist in Kent and I'm so happy I went. It was well worth the 3-4 hour drive. I had to have a TVS first to see what my pelvic organs were like at that moment in time. Now I mentioned to her that on my MRI it said my womb was faced forward but tilted towards itself whereas ultrasounds before and this internal one today shows it sitting backwards towards my spine. I have no cysts today which is good but I showed signs of adenomyosis. Everything else was normal and perfectly fine. It hurt quite a bit when she pressed on my uterus through the vaginal wall through the POD though. I got up perfectly fine after but shortly after I experienced cramps and have been every since. I'm getting bad pain in the places it was hurting when she was pressing which was inevitable.

I then went to see Mr Chappatte who was amazing as every has said and he took a brief history as they all do and asked what I wanted him to do for me. I didn't really know what to say as I've never had the option. My mum said that I just want to know if I can have children and to get rid of the pain. He said that they're three options; have zoladex or prostap, have a lap or have mirena. I'm not too keen on the thought of the mirena but if it will help then I guess its worth the try. Again he asked what I'd prefer but I have no idea what would be best so he suggested that I have zoladex or prostap for 3 months, go back to him for a laparoscopy and whilst I'm having the lap, he'll do a dye test and put the mirena in if I choose to have it.

All in all, he's everything and more than I expected and I'm very grateful to him and his team for being amazing. It really does pay to go private...well NHS but it's a private hospital.

Thanks for reading and hope you're all well.

Leya xo

P.s Visit my question post and join the community at (https://healthunlocked.com/endometriosis-uk/questions/130691583/need-some-advice-on-experiences-with-zoladex-prostap-and-mirena-please)

Hi everyone,

I am sorry that I haven't posted in a while. I've had nothing to talk about and figured that it would be pointless to post if there's nothing endo related. From now on I will only post if there is something endo related to talk about.

So, today I had some great news. It's a bit short notice but on Monday my new endo specialist is going to see me. I am really nervous though as before I see him, I have to have a TVS (transvaginal scan/internal ultrasound) I've had one before and it hurts like a bitch. It's not even the fact that it's uncomfortable, it's the fact that when someone is pushing and shoving around an area that is sensitive, its going to hurt. I hope my appointment with the specialist is long as I have A LOT to talk about. I feel like I shouldn't tell him everything as that might get on his nerves or it might confuse him. I'll write about how that goes on Monday possibly Tuesday.

I've also experienced a fairly new symptom today. I went to the toilet and I had a wee, as I came to the end, I felt a sharp pain go up my tummy where my belly button is. It came from below and shot up to my belly button. I don't know what it is but I've had it a few times now. I'm on at the moment and don't know whether that could be a factor or not. Also I've had chest pains that came on about a week ago and haven't gone yet. It's in my ribs, just below my boobs. I think I mentioned it before but I wanted to just say it again as I think it may be hormonal as well seeing as my period came today.

Sorry if that's TMI but I did warn that I will be brutally honest and speak about anything and everything here.

Thanks for reading and don't forget to comment if you have anything to say or ask.

Leya xo

Hey, girls!

Hope everyone is feeling good today. I am wondering about some symptoms I've been having. I'm not too sure whether its endo related or not but it seems as though it is. I keep getting pain in my ribs, just under my boobs and its starting to get on my nerves now because its there almost all the time. I've almost got my pelvic pains sorted as I only get the burning feeling now, whereas before I'd get excruciating pains that sent me to hospital. I've heard that women with endo can sometimes have endo on the diaphragm. I'm not saying for definite that this is what it is but it could be. I don't know what other symptoms there are for diaphragmatic endo but I know some are feeling full quickly, feeling short of breath and the rib/chest pain. If any of you have it or know of anything to do with it please comment. I have changed the comment system so anyone can comment, silly me didn't realise it was on members only.

Hopefully now I'll get to talk to some of you. Let me know if you think there is anything I could add on here. Now I'm going to go look after my poorly guinea pig :( The black one is Lexi and the white one is Lily, Lexi is the poorly one.

Leya xo

Sorry I didn't write last night, I've had an awful migraine since yesterday and I can't seem to shake it off. It's probably due to the stress recently but I'm not as stressed as usual. I went to college today and managed to work through it but probably would have been better at home. I thought that with the migraine there, I wouldn't feel the endo pain as much but it proved me wrong again. I came  home and had to sit down straight away. It was like a burning sensation in the left side and it was really painful. Just thinking about pain actually, earlier, about half an hour before my class finished, I had a slight pain in my tummy and then felt a sudden urge to go to the toilet. I can usually hold it for as long as I wish and I had gone to the toilet about 2 hours before that but it felt like I'd not gone for weeks and I needed to go or I'd have an accident. I've never experienced that before and it was quite a shock. I don't know if that's a symptom that will stay or whether its a one off.

I'm also feeling very bloated today and it is the worst thing because when I sit down I look about 6 months pregnant which is embarrassing. It's not as bad when I stand up because I can hold my tummy in but when I sit down and relax it looks awful. I feel fat and horrible and I don't like anyone near me or to look at me and I wear really baggy clothes or put something over my tummy to hide it. I'm not fat my any means but I feel it when this happens.

Thanks to everyone who came to my blog 2 days ago, I had 84 views, the most I've ever had. I really want people to read this and fell like they're learning something from this.

Hope all of you are well,

Leya :) xo

P.s I am putting up another page soon called Endo dictionary. It will include all the fancy terms that doctors and professionals use that we don't understand to well. Hopefully that will give some of you an upper hand when speaking about your endo and the things that are happening.

To put it bluntly, today has been shit!

I don't even know where to start, everything that could go wrong today, has! I woke up and I wasn't in too much pain, as the day has progressed, I have experienced a burning pain in my left ovary though. Which partly brings me to the first part of today's shitness! (I know it's not a word but who cares?) In July last year, I had an MRI, to see if my endo was extensive or not. It wasn't but I was told at the time that I had a retroflexed womb that was 3.5cm, 2cm smaller than it should be, I had an ovarian cyst and fluid in the POD. I was a bit shocked but I got over it fast, I understood that my chances of fertility were uncertain until I tried and that I am prone to ovarian cysts. That was fine until today.

Today I had a letter that said I have possible adenomyosis, PCOS and endo. I had an ovarian cyst which was conclusive with PCOS and that I would need an ultrasound to confirm the PCOS. It said that I had an anteverted, retroflexed uterus which means my womb tilts forwards as normal but folds back onto itself in a very tight "C" shape. I have rectovaginal endometriosis which I had told them from day 1 that I had but they denied it and also that the whole uterine corpus (womb, cervix, vagina) is smaller. To top it all off, my gynae was all bitchy with the letter saying that I was wrong in what I said when actually the proper results have shown I was right all along. I can't even explain how upset and angry I was this morning. I asked for her to write to my GP stating she had discharged me so I could see a specialist because she was just a pain specialist and she puts at the beginning of the letter something about she has done this letter on my request so I can be refered to someone else which she wasn't aware of that system and she didn't see why she had to do it.

I just can't believe still how she's being just because I want to see a specialist. Then about 2 hours later my fiance gets a call from this random woman telling him that he's lost his job because they're cutting down on staff because there aren't as many orders as there were and they don't need him. We'd planned so many things and were about to plan our wedding and pay for things. It's a good job I didn't do anything as that would have ended so badly.

There were a few other things like dropping things, stuff not working but that is all little so not relevant. I can't wait to see my specialist now, I've heard so many great things about him and I know that I'll get all the help I need when I'm there, well at least I hope I will. Even sadder was that we were saving up to survive with a baby when the time comes and now we have nothing. I suppose everything happens for a reason but why? Why does it have to be this heartbreaking and frustrating?

I hope all of you have had better days and just so you know, the lady I saw was at Oxford University Hospital, Miss Jane Moore. If you are refered to her or anyone for endo at that hospital, steer clear. I've heard a lot of bad stuff about her. For your safety and sanity, I'd not bother. If any of you are interested in the specialist I'm going to see then go to kendoc.org .

Thanks for reading and again, staying throughout my rant and ramble.

Night, night, sleep tight girls!

Leya :) xo

Hey everyone,

So today I've done well, I went out to town and did quite a bit of walking and I managed really well until the last half an hour or so. It helped that whilst I was out I saw a friend who's coming round in a bit to cheer me up. She's amazing and completely understands me and my endo. She is the only friend I have as there's never any time that I go out to socialise and I'd guess that most of you are the same. I always feel tired and I feel like I just want to snuggle up in bed and stay there all day. It wears me out being in pain all the time and it doesn't help that my fiance wakes up at 5am for work. I still haven't figured out how to stay awake till 9-10 pm but I'll get there I guess.

I also spoke to one of my fiance's mates and he has gone for acupuncture today for a torn ligament in his knee. I have occasionally heard of this for endo girls but its not spoke about that often. I'm absolutely terrified of needles and the thought of having lots put in my body at once freaks me out but I think I might be willing to give it a go. I don't know if any of you girls reading this have had it done but it would be great to hear off any of you that have and maybe give me a brief rundown of how it feels, what happens and if it works. I'm considering it but I will have to really think about it.

Again today, I've got home and not moved. The pain is incredibly strong but bearable. I am having cramps like a period but there's no show yet which is always worse than actually bleeding because I always get caught out and then I'm in a mess. (Sorry if that's TMI but someone has to talk about it! And if you're a guy then I really do apologise for that, but now you understand a little more why girls get grouchy because sh*t like that happens) Anyway, I'm hoping that nothing happens as I hate being on as I'm in so much pain. I am currently using contraceptive patches, Evra, which did work and made it less painful and lighter but now I've started getting heavier and there's more pain. Not as bad as before but it's there. I don't know what to do about it, whether to wait for my gynae appointment or to just do something via my GP.

So again, that's about it for today, sorry for the TMI but no one talks about periods, its very taboo but why should it be? Men are used to us having babies and being there for the birth so why can't we talk about periods in front of them?! They're not stupid, they know every woman gets them yet we never mention it in front of them and I personally think that they should be involved in things like this, they can give us more support if they understand a bit more about it. Don't get me wrong I'm not gonna go all "free bleed" on you all (google it with great caution!!!!) but I definitely think that men should know more about it. And know more about endo, my fiance could be a specialist I tell him so much about it all.

That was supposed to be the end of this, I'll try again. So, that's about it now. Please do contact me or leave a comment if you want to share a story about acupuncture for endo. Thanks for reading through my rambling.

Leya :) xo

Hey everyone,

Today started off well and I thought that I would be pain free but oh no, endo couldn't give me just one day off could it? NO!! I have had for the last 6-8 hours, non stop sharp pain either side of my pelvis, almost where I imagine my ovaries would be. Now, although I have endo, no one has bothered to tell me exactly where it is. Partly because they don't bleeding well know! I know that I get cysts and am awaiting tests for PCOS. Could this possibly be what I'm experiencing at the moment? I don't know. All I know is, I need to get this referral through as fast as I can so I can have another lap and get myself sorted.

I feel like I'm always badgering on about pain and endo and fertility but it's because its never off my mind. It's hard not to think about when it's there every second of the day reminding you that it's still there, still hurting, still causing problems. Often, I feel like my family get sick of me talking about how much pain I'm in, new information about endo and how much I want babies but often, it's the only thing I want to talk about. Some of you may be the more quiet type about it, not really wanting to talk to anyone about it but I like my family to know what I've found out about endo or to just be a shoulder to cry on when I'm in pain.

I guess there's not really much more to say than that. I hope that many of you are having a better day than I am. Leave a comment below if there are any questions or comments.

Thanks for reading,

Leya :) xo

So, where to start. Hi, my name is Leya. I'm 18 and I live in Staffordshire, England. I am currently studying to become a midwife. I got diagnosed with Endometriosis in August 2012. I have done a lot of research on Endo and hope that through this blog, I can help a lot of you lovely ladies out there. I will be posting a lot of different things on here. Mostly about myself and my experiences with endo but I will also be posting things like the endo diet and alternative therapies, things that have helped me and also some of your stories too if you'd like. I am hoping that we can all interact and help each other and I will do a question and answer session once a month for anyone who needs to know anything. If there is anything personal then I have put my e-mail in the description about me and I hope to hear from you all soon.

In regards to your own stories, I will have you voluntarily write to me with your full story and I will copy that to my blog to present to others. I will need your full permission to do so and if you just want to tell me your story to give me hope or faith to carry on then I will NOT post to my blog. I am currently studying in an industry where there are laws about data protection and confidentiality and that will comply with everything that is told to me.

If you are reading this then I am very grateful and I hope you will bare with me whilst I get used to working with this system. If you know anyone or you are someone with endo then please contact me, leave a comment, e-mail me. I will try to post something everyday depending on how busy I am.

I hope to hear from some of you soon.

Leya :) xo